Drayke did incredibly well during the broviac placement. He really surprised the Fellow, Maria. She is the one who told us last Saturday that he had no chance of survival, etc.
Afterwards the surgeon came into the quiet room to let us know that they tried to go thru his neck/chest but his anotomy wouldnt allow for it so it was placed in his right thigh. The surgeon also told us how well everything went and that he has an availability on his schedule to get Drayke's trach & GI tube put in. WOW! We know he did good but not THAT good! YAY for my strong baby bug!
About 30 minutes after that our fave, Dr P, showed up and played with his vent. We told him what the fellow & nurse had said last week and all he said was "and Fellow's have a LOT more to learn". He is still confident that we keep going as we have been Drayke will make it. ALL of his problems stem from the Brochial Pulmonary Displasia, BPD. Once we get that back under control, and it looks like we are on the right track, that the heart WILL take care of itself. He is totally against any kind of surgical repair to his heart. Dr P thinks he simply had a setback from having back to back staph infections. It was the first breathe of fresh air we have had all week. With Dr P this confident, our hopes are high. Gods I love that doctor.
Dr R came in after that (baby's current attending) and spooked us a tad by telling us he had ordered a blood test. He had finally done an actual physical exam of Drayke & noticed that 4 toes are partially fused (2 on each foot). The technical term is syndactyly. R & I then told him we both have webbed toes and showed the Fellow. The both laughed and said yep, it's genetic. I asked him to still go ahead with the test so we know what it says.
The two pics are from today after the surgery.
1 comment:
Soooo very glad to hear this news - way to go, Drayke!! Happy 200 day birthday, little dude!
Thanks for the update. I always check-in here whenever I can. Your family will continue to be in our prayers.
Erin
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