Monday, January 26, 2009

274th Day in the NICU

I am going to make this very brief. One side of Drayke's heart is not working and they other half is working poorly. They have done all they can do. I will update more but as of right now he is not going to make it through the night. We are taking him off life support tonight because he cannot recover from this. We had at least 6 doctors tell us this. Also Drayke is telling us this because he saturations are dropping slowly. Currently he is on 100% O2 and he is saturating at 60%. Our little bug has been through enough. He is not responding to anything. We will post when he passes. One thing we did bring up is tissue and organ donation. They made calls and they can use his heart valves and Dr Prince says they can use some tissue for research so that it may save lives in the future.

25 comments:

Dee said...

He and your family are in our prayers.

apocalypticbob said...

Keeping you all in my thoughts and prayers.

Amber

katie said...

You are all in our thoughts and prayers. Yes, the people and their families who are saved by Drayke's generous donation will be forever grateful.

I am lighting a candle for you all tonight and hugging my children a little tighter.

May you guys have peace and may Drayke finally find peace and rest. My thoughts and prayers are with all of you.

Anonymous said...

I am so sorry. Drayke has been so such a fighter - you all have. You are in everyone's thoughts. I wish you strength through this impossible time.

Nik said...

Oh, I am so sorry. I'm so sad. May Drayke finally find some physical peace. What a blessing that he was born to people that have loved him so well!

What is remembered lives. I will remember Drayke.

Ewigweibliche

Anonymous said...

Omg, i'm so so so sorry. :( I pray he passes peacefully. Let me know if you ever need to vent/talk, I don't know if you know, but I have also lost a child. {{hugs}}

Anonymous said...

oops, last comment was from me, Inkprincess from LJ

perplexed01 said...

I am so sorry. My heart, thoughts, prayers go to you and your family. He will be forever loved. *hugs*

Daxton's Personal Assistant said...

Oh, Lorri and Robert, our hearts go out to you. We are so, so sorry. I hope Drayke can now be at peace, and I picture him and our Aubrie playing together. Drayke has touched a lot of lives, and he will continue doing so.

Anonymous said...

I work in the NICU, and I loved stopping in to see Drayke. I am so sorry that you guys are suffering tonight after all the progress that Drayke made in the last few months.

I will be praying for you all in this tough time, and I will always remember your little one.

The Snyder's said...

awww.. honey..... I am sorry!

thethinwhtduke said...

our hearts are just broken by what's happened. we all loved drayke so very much. you and he will be in out hearts.

melissa, adrian, and liam (july LJ community)

Sisters Of the Moon said...

my thoughts are with you
I had to make this decisions before, and I know just how hard it is. He is so strong for coming this far!!

Laura (speaking for everyone!) said...

you are in my prayers- and my heart is breaking for you.

dana said...

My heart is going out to you. Drayke fought a long hard battle. What a beautiful little angel he is going to be.

Mindy (July 08 LJ community) said...

I'm so sorry. I'm crying. Drayke and both of you have been through so much. This week's trache surgery was so promising. I was so hoping he was turning a corner. This is devastating. Big hugs to all three of you. I have a lump in my throat. I will miss baby Drayke. Please continue to post here, we want to hear how you're all doing. Oh, I'm so incredibly sorry.

Youve had 9 incredible months with him. And it's so, so not enough.

(tears and hugs)

Missy said...

There are no words to comfort your family right now, I know this. But please know that Drayke has touched our life and given us strength to fight our own battles. He will always be remembered and hold a special place in my heart. Over the months of reading your posts we have grown attached to him and will miss his beautiful little face. Your sons life touched many people in many ways I'm sure you'll never know. Hold that, with him, in your hearts through this terribly difficult time. We're crying with you and will never forget your strong little fighter guy.

FireRose said...

Hun, you have my love and prayers. I hope the little guy passes quietly and peacefully - and he will know he is loved. If there was anything I could do to make the pain less, I would.

/FireRose

Alicia said...

I am so sorry. I know there are no words that can take the pain away, but I will be praying that he is comfortable and that he goes in peace. May the Lord watch over you as you deal with this devastating loss.

Habibe said...

I am so terribly sorry for your loss. I just heard of Drayke recently, but he has a place in my heart too.

There are no words for the loss of a child. I've been there too.

Anonymous said...

I am so very, very sorry to hear this news.

Anonymous said...

As a mom who's been through this, I pray for peace for you. I know its a rough journey. I'm so sorry you are going through this.

Anonymous said...

What a loving, fitting tribute to your precious, bubble-blowing dragon. All babies should be so loved. Thank you for letting me know Drayke.

I will remember.

Ryans Mama said...

I was always updated by Mollie about your angel. I will keep you and Drayke in my prayers. You did have a fighter!!!

Brandy said...

I am so sorry. May his spirit watch over your family during your grief *hugs*