Met with Drayke's last doctor & one of his daytime primary nurses. We met in the room we used to go to regularly for Parent Reach Out meetings every Wednesday. Just being back in the hospital was hard enough. Being on the 4th floor, which is the NICU was even harder.
There were surprises in the autopsy results. We thought the problem was type a flu. His nasal swab was positive. They ran the test on his lungs & heart and they were negative. The flu didnt kill him. It was a massive bowel infection that he could not fight. He was loaded with antibiotics but he just did not have enough reserves to be able to fight anything. All of his energy had gone into healing from the surgery we had wanted so badly: the trach/gtube/circumsision surgery the week before. A few days before that surgery he wasnt feeling great. I remember telling him "cmon baby boy, we have your surgery scheduled finally. You cant get sick now". We went thru with the surgery, now I am kicking myself for not paying more attention to the signs that he was getting sick before his surgery. I feel like I was being selfish in my desires to finally have a tape free baby. We should have waited another two weeks.
The biggest problem was that the bowel infection effected the perfusion of blood in his bowels and then his brain & the rest of his body systems.
We did have it confirmed that his hair was red blond and he had grey blue eyes (we never had bright light in his room). Other than having pulmonary hypertrophy & pulmonary hypertension he was otherwise perfect. All of his other organs we all very normal.
At this point it is all speculation as how things could have been different. What if my boss had not have fired me, leading to my severe blood pressure problems thus stunting Draykes growth in my womb during that last month.