Baby Bug weighs 9 pounds 6 ounces again tonight. Yes, he has dropped a lot of weight, 8 ounces in 5 days, but that is due to all the diuretics he is on. The big news is he is now 21 inches long! YAY!
A good friend of mine sent me a link to Texas Childrens Hospital in Houston. The pulmonologist who started the peds lung transplant team in St Louis is doing the same thing in TX. I called them this morning and left a voice mail. They called back & R talked to someone for a bit. They advised him that we will be getting a call back within 24 hours & to advise the resident on duty to prepare a summary of Drayke's condition. We shall see if we can get him in there. In the meantime this weeks resident is going to be treating Drayke very agressively along with the cardiologists and pulmonologists.
1 comment:
Sending lots of positive vibes for some good news from Texas Children's Hospital.
And wow, Drayke is getting to be such a big boy!! 21 inches and 9 pounds, 6 ounces! Way to go, kiddo!
Still thinking of you all -
Erin
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