Today has been really depressing. We got a call from the hospital to say that Drayke has been stat'ing in the 50's and they were going to put him back on Nitric. Also Dr P wanted to talk to us. We got done with the errands we had to run. We got in and little man was stat'ing in the 80's. Dr P sat us down and told us the devastating news.
Drayke's application for a lung transplant has been rejected. Dr P said that Pegi stat'd the reason was because he was not stable and he needed to be double his weight. He also told us that we needed to call Pegi to get more details. It was already to late to call her so we have to wait till tomorrow.
At this time both mom and I was beginning to lose it. Mom was tearing up and at that moment Drayke sensed something was wrong and his lungs and trachea became tensed and he started to destat. We walked out of the room to have the doctors work on him.
We came back in later and he was receiving a aresol treatment and his stat's were better. He was stating in the mid to high 90's. His Nitric was at 5ml. His eyes were open and looking all around and his was sucking on his hand. We sat there and talked to him and he was responding so well. Mom asked Dr P for a X-ray on his chest. He immediately ordered it and when it came back it showed really no difference. His heart is still enlarged. We are not ready to give up.
I called a lady back that has been through a transplant and we spoke over the phone for almost 40 min. We spoke about alot of issues that can come out of a transplant. My heart goes out to all she has been through. Even after hearing what she had to say I still want to go through this to give him a chance. With everything there are both positives and negatives.
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