131st Day in the NICU

Drayke is still trying to recover from the CT Scan. We spoke to Dr Karmo today and he said that the reason Drayke stat's are not as good as they were is because Drayke was worn out from the CT Scan but he did better than Dr Karmo thought he was going to do. Now the CT scan showed a small PVL. He did not saw how big or anything. I am not concerned with that. Dr Karmo talked to Pegi at St Louis and she does not know if this will effect his chance at a lung transplant. Also they decided to wait on everything else (I.E. Trach and upping his Viagra dose). They have fed-ex'd the scan to St Louis so we are just waiting on this to get done.

Since he is 4 months old he is going to get his shots. We asked them to not do a cocktail of shots and do them individually. Today he got 2 of his shots. Tomorrow they will give him 1 shot and Monday 2 shots. We also authorized them to give him the Hep B shot that we did not have them give him at 2 months. We had them give him this because he has to have it before the transplant and will not be able to get it after the transplant.

He is currently eating 56 CC's of formula (Still done by a tube). He also now weighs 8 lbs 1 oz. He is becoming such a big boy. He has gained more than 400 grams in a week.

Here is a currrent picture of our little one.