I held Drayke today for a good two hours. I also got to see him saturate at 100% for the first time in more than a week *YAY!*
Baby boy hit 10 pounds 7 ounces!
We are needing to talk to his cardiologist as soon as possible in regards to his cardiac hypertrophy (thickening of the heart muscles). I am needing to hear from one of the top specialists in the field to make sure what can be done to help this. One of the Neonatology Fellows came in and told us nothing can be done now that the biggest issue is Drayke's heart. I am printing out some research and will bring to the hospital on Tuesday (Dr M is out until then). I need to know if Dr M has given up or does he have a plan in mind.
If Dr M says we are done then dad & I have a huge decission to make in this next week. Our fave nurse is already planning on being with us if we decide to do the unthinkable. The thought is killing me by inches. I have not been able to stop crying since 3 this afternoon.
8 comments:
Drayke will NOT die.
Praying for you and yours.
I am so sorry that you are dealing with this. My heart aches for you just knowing that you are having to even consider this. We will be praying!
Laura Kelly
Thinking of you today.
Praying for positive news for Drayke.
Fiona
Just wanted you guys to know we're praying for you today, as we always do.
As long as that little guy keeps fighting, you've got to keep fighting, too!
Miracles still happen and Drayke's still doing his part. You've got to do yours as well.
He's too much like his mother - too stubborn to surrender. You're not allowed to be anything less than your son!
Love ya!
Michelle (& Brian & David)
hang in there, kiddo...he's come so far, and we're all sending good thoughts your way!
Love,
Sue & Mark
I keep checking back for updates...
Praying that there is some good news soon.
Fiona
Lori and Robert and baby Drayke, Many people are thinking of you and praying for you!! Love you dearly!!!
Cristela Schrier
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