Drayke has been fairly stable this week. Tomorrow he is getting a Broviac line put in because he can blow thru an IV in no time. A couple of days ago a nurse practitioner attempted to get a second PICC in but she couldnt get it the thread to where it needed to go.
The reason we have agreed to the Broviac is the lipids they are wanting to give him are not compatable with the Ativan going thru the same line. Also, we can do blood draws on him without having to stick him (the PICC on babies is much too fine a catheter, it could clot off easily).
The conference with all of his doctors, some nurses and ourselves has been rescheduled to early next week. It doesnt do any good to have a meeting of the minds without his cardiologist.
Dad & I have been doing a lot of research into a potential surgical procedure to help with the pulmonary hypertension. Install a shunt to equalize pressures in the heart. Our friend from Centennial was sent here due to a hole in his heart. It was decided that it was this hole that was preventing him from getting PH so it was decided to leave it as is. This proceedure used in combination with a surgery for the septal hypertrophy could potentially take care of his issues. It is a long shot and we are going for broke on this.
2 comments:
Wow, has that ever been done before? What are the doctors saying?
Oh, and happy early 200th day!
We think of Drayke a lot... Keep these updates coming!
I have been checking this several times a day waiting for an update. I'm glad that it has been an uneventful week. I know that ya'll are anxious for your meeting. We are still praying for Drayke.
laura kelly
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