116th Day in the NICU

Today has been pretty good. Drayke now weighs 6 lb 10 oz. He is still on constant sedation but that is a good thing because he wants to pull out his O2 tube which would not be good right now. I have been on and off the phones with insurance and with St Louis Childrens hospital. I was able to speak to Ann at the St Louis hospital in regards to the transplant. She asked if she could get some records so I handed the phone over to the nurse manager that was walking by and she spoke to her. Turns out the Nurse Manager did not fax her everything so she called back and needed to talk to the nurse manager again. Dr P called Ann and left a VM for her to call him back because they needed to talk to get information sorted out. Ann called back and spoke to Dr P. She was able to get all the info needed and on Monday when the committee meets they will decide if Drayke would benefit from the transplant. She asked for head ultrasounds and the thing is they are great so I have a positive feeling that he will be approved. I am not sure where to go after this but we will have to wait till monday.

Drayke decided to pull out his IV today so Dr P had to put another back in but the good thing is that they took out the 2 out of his head so he does not look like devil baby. They had to put one back in his head though. His little butt is healing just nice since we had the nurses put vitamin E on his sore butt. Also we were told today that Centennial has never had a transplant baby before so he will be the first and this is why most of the Dr's do not really know about lung transplants there. Also Drayke is the first baby at this hospital to receive the viagra treatment as well. Dr I has done it before but apparently at a different hospital. Our little boy is living up to his name.