117th Day in the NICU

Drayke today weighs 6 lb 11 oz and they had to up his BPM's to 50 from 45 because his CO2 was getting to high. Also the IV ended up coming out so they decided not to put another one in. As of 6 pm he has been on the Viagra therapy for 48 hours so we will see if it helps. They are also only giving him sedation when he absolutely needs it. Also his little butt has gotten better.

We got to the hospital and I was allowed to hold him. When the nurse got done settling him in my arms he decided he had to have a bowel movement that shook his body and my arm for a good 30 seconds. We waited to change him. Last week the moment he had a movement he was fussing and it hurt his butt. This time he was fine while we waited to make sure he was done. I ended up holding him for 1 1/2 hrs. I have not held him in over a month and boy did I need this. He slept pretty much the entire time. Towards the end his belly was grumbling so he was waking up for his feeding. When he woke up he was actually awake for a while and was looking all around. Lately he has been so sedated that he would open his eyes and roll them and fall back to sleep.

I have been doing so much research over and over again in regards to his transplant. I am positive our little one will survive. Here is a link to St Louis Children's Hospital
http://www.stlouischildrens.org/tabid/279/itemid/200/Lung-Transplant-Program.aspx